Monday, January 11, 2010

The Diva

Mia is a short and sweet name (in our opinion). Just three letters. Feminine and yet not too cheesy. Never did I dream that when we named our daughter Mia that we would have tons of nicknames for her. They range from Mo, Mosie, Meme, Me and Miamo. Yes, cheesy in love parents with all our goofey names. However, the one that comes to mind most of the time is Diva.

Our sweet girl has had a bit of a rough go. She has had reflux, eczema (to the point of it pussing. Sorry- TMI) and a milk allergy. On top of this, she has had an ear infection and several colds. We also can't forget that she would only tilt her head to one side causing a potential problem with her head shape and neck muscles (I am happy to report that this has since worked itself out). So, as you can imagine, we have taken too many trips to the Ped for me to even count.

All these things have contributed to her now being called the Diva. She is on partially digested formula at the cost of 70+ per week (for now, as she consumes more we will need to buy more). She cannot use typical baby products on her skin as her skin will get really angry and itchy. So, we have nothing but the best there too. Her scalp is dry so, we need to also us special shampoo for that too. You name it... laundry detergent, yep that too.... only the good stuff.

I feel horrible that she feels so horrible. Being a third time mom it is easy to be a bit over confident and think - I can do this. I have done it twice before. Mia is teaching me that I have never yet had a Mia and that she will call the shots.

Mia fights sleep. Literally, the only way to get her to sleep is to swaddle her, hold her close and pat her bottom until she finally relaxes a bit. After that, you move very carefully as the smallest change will wake her up. I find that I actually hold my breath when she is sleeping for fear of waking her. This leads to only two to three 20min naps a day. So, to top it off she is also over tired.

One amazing (very, very, amazing) thing has happened though. At just 12 weeks she sleeps though the night. Oh, I am terrified to even write this as I feel as though she will somehow find out and that she will decided that sleeping all night is for babies and she does not need any of that! So, my sanity is being helped by my ability to get 6 hours straight though the night. It would be more but I like to cause myself pain and go to the gym once she is asleep. This sleep might be due more to her pure exhaustion from fussing and crying all day, but for now, I will humor myself and pretend that I have somehow made this happen.

The boys have adjusted really well to our new little Diva. Carson will cover his ears during her crying and Fin will just ask me to put her away or give her to ... anyone else around. Overall, they love her very much and have fun giving her the paci and playing with her toys.
She might be a Diva but she is my little Diva. When she smiles it is from the tips of her toes and she has a giggle that will steal your heart. She loves me very much and it feels good to know that I am her place of comfort and security.




Lets face it. She joined a crazy family. We have a crazy life, we are loud, and we have a crazy schedule. She has had to make our life work rather than us making it work for her. For that I feel guilty. She is still so small and I know this time will go quickly.

Things are bit more under control now that we have all the health issues worked out. She is starting to enjoy things a bit more and that makes me really happy.

So, my lack of blogging, failure to return phone calls, emails, etc. You can blame the Diva. She runs my show and for now.... that is perfect by me. She is after all one of the three greatest loves of my life. Even if I am just slightly scared of her;)

Sunday, January 3, 2010

2009 In Reflection

Wow. I know. A post. One of my goals for 2010 is to get back on track with this blog. Facebook has really taken time away from my writing and even though, I love the time on FB, writing is therapeutic for me so, back to my journal. I hope you will stick it out with us and continue to read.

-----------------------------------------------
At the end of last year (2008) I unexpectedly (somewhat unexpectedly) was suddenly unemployed. (Yeah, that sentence does not really make sense but neither did the circumstances so, I am leaving it in.)

I have officially been a SAHM for a little over one year. I have to fill you in on a few things about me so that what I write makes more sense.

I was never the girl that dreamed of having children all my life. I always loved kids and thought I might want them one day but never had that deep, down need to have them from childhood. You know what I mean. I was never one of those girls that was a 'born mother'. I was not until I met Jay that I realized that I had just not found the right person to have children with.

So, once we were married I very much wanted a baby. Unlike a lot of moms I had no problem going back to work after Carson's birth. I adored and loved my baby but after 16 weeks of maternity leave... I was ready to get back into a routine, make some money and get my brain back. Truth be told (I did not know this at the time) I was totally overwhelmed with being a new mom. I genuinely feel that working made me a better mom.

Fast forward a few years and after Carson's diagnosis - work became a very good escape. Home life was extremely stressful. I was depressed and totally heartbroken and work was a good place for me to go and not have to face all my fears every minute of every day. Even though my love for Carson was more than I ever dreamed I could love someone, the pain of watching him not develop, not speak, not interact, and live in his own world.. was too much for me.

So, I continued to work. We also realized early on that if we were to get Carson all the help we need for him, I would have to work. At that time the economy was doing really well. Jay and I were very comfortable and I laugh now at the things we did and purchased. We could afford these things on top of any needed expense for Carson.

Then, I got pregnant with Fin. I had a very challenging pregnancy and work again, was a good place to be "off" of mom duty and actually relax a bit. I had a great boss, knew my work well and enjoyed it.

I will never forget being on bed rest and getting a call from my boss. He said he was resigning and was sorry to tell me while I was out on bed rest but that he would not be there when I returned from maternity leave. I was devastated. My old boss was the BEST. He was supportive and knew of Carson's needs and was always willing to help me work it out so that I could be a good mom and a good employee. His leaving work was a big turning point.

I returned to work 12 weeks after Fin's birth. I was not as overwhelmed with my new mommy role as I had done this once before but now I had two children. Two children was harder. Two children was more work at home and lets face it.... I had one child, a newborn and another child, a toddler with special needs.

I can honestly say that I was still very much in the grief phase of Carson's diagnosis when I had Fin. I had terrible baby blues and cried for months. I truly thank God that Fin was such an easy baby. To top it off, we moved into a new home, lost thousands on the home we sold and the economy was tanking. I knew we were in for a very bumpy ride.

So, I stayed at work. I could not afford to leave. At this point I was exhausted and ready to start entertaining the idea of being a SAHM but, if Jay lost his job we would be.......... sc#$#ed. So, I held on tight and tried to do a great job at work and at home. Any WOTHM can tell you, this is no small feat and if anyone out there judges working moms all I can say is... you try it. It is not easy at all.


As Carson's needs grew so did my need to be more available. Jay made more money that I did so, it only made sense that if one of us had to take time off, it was me. My work was very supportive and again, I will always have that as a positive memory. Eventually though, we (my place of employment and I) could no longer make it work. Lots occurred and that really does not matter anymore now but in the end, December 2008, I was unemployed.

I remember having so many different feelings about this. I was so happy that a decision was finally made but yet also angry at the same time. Let's face it. Carson's diagnosis trumps anything and everything. Autism has ruled our life from the minute it appeared that he was on the spectrum. I was resentful. I was resentful that I could not choose to leave my job to be a SAHM but that I HAD to leave my job to take my child to therapies, doc appointments, etc. My idea of a SAHM was not what I was going to live. I was not happy about that but, of course, knew there was nothing I could do to change it. Please don't judge me on these feelings. I wanted to be home with my kids but I wanted to be doing fun things with them, playing with them, enjoying them. Not living in an Autism bubble.

To add to it, the fear of Jay loosing his job was very real. Insurance does not cover much for Autism but at least it covered a bit and the reality of our very insecure state was very stressful. We had many discussions on the "what if's".

I remember Jan and Feb feeling like years of isolation. I am ultra social. Work was a great outlet for me and I had a very social job. I knew very few people at home during the day. I did not know our neighbors. I would call Jay at work and eventually went over my minutes on my phone plan just trying to find someone to chat with.

I also went though a ton of emotions dealing with Autism. Being home full time allowed me to see all day everyday just how much my child was affected. I guess those hours of being at work really did allow me to escape the reality of our situation. Carson was challenging. VERY challenging. I cried almost daily and needed help.

Over the next few months I created a great team for support. We got a social worker, behaviorists, I met and loved my fellow neighborhood moms. It got better and I felt like I was getting better at it too.

Finding out I was pregnant with Mia was a joy. It was perfect timing. I was home. I did not have to worry about going back to work for a while and could enjoy the pregnancy and her birth.

The summer flew by. Our schedule was packed, HBOT, sensory camps, OT, PT, and speech. Carson had two to three appointments each day. It was a ton of work but again, I am so grateful that we were able to do it. Had I been working, we would not have been able to do it all.

I also got to enjoy one-on-one time with Fin before Mia's birth. While Carson was at his appointments, Fin and I would go bumming or just hang out together waiting for Carson to finish. I am so lucky that Fin is so young that he does not resent or even realize that he lives by his brothers schedule.

Mia's birth came in the fall. Carson was going to mainstream Kindergarten (with a full time aide). Things all seemed to fall into place. Even though I was (still am) sleep deprived and a bit crazy, we managed to fall into a good rhythm.

Gone were the days of feeling resentful, overwhelmed and depressed. Gone were the days of feeling insecure. Yeah, I can't control if Jay looses his job so, I figured I would not continue to worry about it.

I guess what I wanted to say was - it was a really hard year. We worked really hard. We watched every penny. We changed our lifestyle. We grew as a family. I grew as a mom.

I will forever be grateful that I have been able to be a SAHM. I don't know if it will be forever. For now, I am content, happy and tremendously blessed. This experience has changed my life and it is one I never thought I would like or have.

Just goes to show us that even in the most stressful of times (or years) there is so much to be gained. So many beautiful memories and moments to treasure. I can tell you this, if the day comes when I want or have to go back to work, it will be really hard. I am madly in love with my family and like hanging out with my kids all day.


In a nut shell, I never realized what a gift it was to end my employment.

Happy New Year to you. No matter what the year brings, you will find blessings when it is all over. I promise.

Monday, December 14, 2009

An Autism Christmas Poem

One of Em's friends sent this to her...it's a great poem...not sure who wrote but it sure hits home with us.

"It was the Night Before Christmas
And all through the house
The creatures were stirring
Yes, even the mouse

We tried melatonin
And gave a hot bath
Asleep early for Christmas?
...an unlikely path

The children were finally All nestled in bed
When visions of Christmas Ran through my OWN head
Did I get the right gift? The right color and style?
Would there be a blank stare Or even, maybe, a smile?

Friends & family come But they don't understand
The pleasure he gets Just from bending his hands.
"Just make him stop it," some say "Just tell him "no",
You must learn to be tough.." On, and on they do go...

We smile and nod
Because we know deep inside
The debate is moot
Let them all take a side

We know what it's like
To live with the spectrum
The struggles and triumphs
Achievements, regressions.

But what some don't know
And what some don't see
Is the joy that we feel
Over simplicity.

He said "hello"!
He ate something green!
He looked me in my eyes
He did not cause a scene!

He peed on the potty!
Who cares if he's ten;
He stopped saying the same thing
Again and again!"

Some others don't realize
Just how we can cope
How we bravely hang on
At the end of our rope

But what they don't see
Is the joy we can't hide
When our children with autism
Make the tiniest stride

We may look at others
Without the problems we face
With envy, with wonder,
Or even distaste,

What we want them to know
What's important to see
Is that children with autism
Bring simplicity.

We don't get excited
Over expensive things
We jump for joy
With the progress work brings

Children with autism
Try so hard every day
That they make us proud
More than words can say.

They work even harder
Than you or I
To achieve something small
To reach a star in the sky

So to those who don't get it
Or can't get a clue
Take a walk in our shoes
And I'll assure you…

That even 10 minutes
Into the walk
You'll look at us all With respect,
even shock.

You will realize
What it is we go through
And the next time you see us
I can assure you

That you won't say a thing
You'll be quiet and learn,
Like the years I learned too
When the tables were turned."

Wednesday, November 25, 2009

So much to be thankful for this year!

Hi Everyone! Finally...another post!

I just want to take a minute to count our blessings. First and foremost, I'm thankful that I have been blessed with Emily, Carson, Griffin and Mia. I never imagined that I could feel so fulfilled.

I'm thankful for my parents and Em's parents for everything that they do to help us. Our children are blessed with three sets of grandparents that love them unconditionally. The babysitting, overnights, dinners, gluten-free goodies, the research on Autism, the help with therapies, the financial help with some of the therapies, supplements, etc., the constant gifts for the kids, the house projects, the list goes on and on. There are so many people that I know that would not get this type of support from their parents. I will be forever grateful for this.

I'm thankful for my job and insurance for my kids (and for Em's unemployment, which keeps us afloat....barely:>)

I'm thankful for our entire families. They are all so interested in our lives and what we are doing to try to help Carson. We are very blessed.

I'm thankful for some wonderful friends who also really take an interest in our children and our life.

I'm thankful for my aunts who always make themselves available to help us out by watching our kids. This is totally appreciated...along with the added gifts and extras...a total blessing.

I'm thankful for Mia so that I will know what it is like to have a daughter...it's going to be very different but also a blessing. She is so beautiful. She's her mommy's twin.

I'm thankful for Griffin for so many reasons. He truly is the easiest child ever. He has the perfect personality. He's hilarious and charming. He's one of a kind. He's a true gift from God. He is the perfect fit for our crazy family. I truly believe that he is an instrumental part of Carson's recovery. He's so patient with him. He plays so nicely with him and he truly loves him.

Since this is "Curing Carson," I want to spend a little extra time on all of the things that I am thankful for about him. Carson is AMAZING. His progress is amazing...of course we want more and faster but as I look at the strides he's made just this year, it blows me away. We have conversations now. He can tell me some things that happened during his day. He can tell me some things that happened yesterday and last week. He's making potty progress. He's sharing and taking turns (sometimes.) He's interested in making friends. He's becoming more and more social. He's doing way better than we thought in Kindergarten. He's spending most of his day on the classroom with the other kids. He's coming out of this world of Autism little by little. As he would say "He makes my heart happy!"

I'm thankful for all of the research done by parents before us. I'm thankful for all of the therapy options, supplements, diets, and knowledge I've gained. I'm thankful for Carson's teachers, therapists, aides, doctors and everyone who has taken part in his recovery process. I hope they all know what they have done for my son.

I'm thankful for Carson for making me a better person and for teaching me life lessons in patience, compassion and love.

I'm thankful for Emily for so many reasons but mostly for taking this journey with me and staying with me. I know I'm not easy to live with sometimes. Our life is not our own, especially right now but it is "ours" and that's the best part of it.

Thanks for reading! I'm thankful for all of you:>)

Saturday, November 14, 2009

Our future star!

You may see Griffin at the CMA's one day!


Saturday, November 7, 2009

The End of Summer

Hey Everyone! We've been slacking on here due to Mia's birth, lack of sleep, tons of visitors and pure exhaustion but here's some more pics from the end of summer. We spent Labor Day up at Grandpa and Grandma K's farm.


They brought up their moped from Florida. Carson loved it.



Ron and Amiee looking very country....




Carson, Luca and Blake went apple picking....

















Little Fin




Ron and Adrian




The motorhome....




Luca's drawing....





Grandpa and Grandma K.



Em driving the Polaris.





My little Carson....



Thanks for reading!



Thursday, November 5, 2009

Party of Five

It has been a while. Yes, I know. We have been a bit busy.

The biggest news is that Miss Mia arrived on October 6th. Yes, a bit earlier than we had planned. Part of the reason I was not updating much was because I was in and out of the hospital with high bp. On the evening of Oct. 5th, the docs decided that it was enough... and scheduled her arrival for the next morning. Things went really well and I am pleased that I was very awake and in the moment. Sure, I was nervous but mostly for all the pokes I was going to get. Having done it twice before, I was not scared. Just ready to meet my sweet girl.
Minutes old - Mia Teresa - 7lbs 3oz, 19 inches long
Totally worth it.



I had a very difficult recovery. It was much more painful than the other two. I stayed an extra day due to my BP. Everyday that goes by, I am feeling better. Of course, very tired but starting to feel more like myself.
I will post more soon. Love you all and thank you for thinking of us - Emily
P.S. - this post is dedicated to Margie. She may be the only person that still comes here and checks for updates. :)